Lived Experience
Bronny Carroll has been working as an expert lived experience consultant on state and national service design for eating disorders for the last 10 years, with both the NSW and Commonwealth Departments of Health.
She was a member of the advisory team to the Medicare Review Taskforce leading to the landmark reform of the MBS for community care rebates for eating disorders, psychological and dietetic treatments. Bronny has served as a lived experience lead on the NSW Ministry of Health steering committee for the NSW Service Plan for People with Eating Disorders for the last 7 years. She has previously worked for the Butterfly Foundation and the Eating Disorders Association in advocacy and fundraising.
As a lived experience lead for InsideOut, she has trained the workforce, co-produced strategy and guidelines, and played a key role in the co-design of research. Bronny leads the development and execution of our lived experience strategy, program and operations across the organisation.
Across NSW, services report an increase in people presenting with Avoidant Restrictive Food Intake Disorder (ARFID), however, clinicians lacked access to evidence-based training to support them. To address this gap, an eLearning program, ARFID Fundamentals, was developed to provide clinicians with guidance on scope of practice across various healthcare settings. Co-produced with lived experience input, evidence informed and drawing on local and international expertise, the training helps clinicians understand ARFID, while differentiating from other feeding and eating disorders to enable a comprehensive assessment, and deliver multidisciplinary, person-centred care.
Complete
Across NSW, health services are increasingly involving people with a lived experience of an eating disorder and/or of caring for a loved one with an eating disorder in Service planning and improvement. This aims to ensure the skills, voices, experiences and contributions of those with a lived experience are effectively implemented, including Resources have been developed to support LHD Coordinators in meaningfully engaging these individuals.
In Progress
In the past 30 years there has been an increased awareness of the higher prevalence of disordered eating and eating disorders in people with and at risk of Type 1 Diabetes (T1D). The Queensland Eating Disorder Service (QuEDS) developed local guidelines for caring for people living with T1D, and an eating disorder or disordered eating. NSW Health formed a working group to review these guidelines, and explore adaptation and development of the guideline for NSW Health services, to provide guidance to clinicians working in the community with people with diabetes on how to assess and manage disordered eating and eating disorders. This guidance improves clinician confidence and ensures people with eating disorders and at risk of T1D receive coordinated, effective care.
In Progress
The 2014 ‘Guidelines for the Inpatient Management of Adult Eating Disorders in General Medical and Psychiatric Settings in NSW’ provides valuable guidance for clinicians in services across the state in the care of a person with an eating disorder in a medical setting. InsideOut Institute in partnership with NSW Health and medical and psychiatric leads across the state have embarked on a full review and redesign of this guideline. The revised guidelines will reflect current evidence and best practice, provide consistent admission criteria, and ensure people with eating disorders can access the appropriate level of inpatient care across NSW.
In Progress
This study investigates brain and hormonal responses to real-time food consumption decisions in individuals with anorexia nervosa using brain imaging and biomarker analysis. The research aims to identify biological drivers of restrictive eating and inform development of novel treatment targets.
In Recruitment
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