InsideOut Institute is Australia's national leader in eating disorder research. Our work spans clinical trials, digital innovation, and translation into real-world practice. Through global research partnerships, we are advancing knowledge to improve prevention, early intervention, and treatment for eating disorders, with the ultimate goal of finding a cure.
EDGI is the world's largest genetic study of Eating Disorders conducted in collaboration with QIMR Berghofer and international researchers. It aims to identify the hundreds of genes contributing to Anorexia Nervosa, Bulimia Nervosa, Binge Eating Disorder, and ARFID, to enable more targeted, personalised interventions and earlier detection in high-risk groups.
Any Australian aged 18 years and over who is currently living with, or has experienced at any point in their lives anorexia nervosa, bulimia nervosa, binge eating disorder, and avoidant restrictive food intake disorder (ARFID) can participate in the study.
Study participants provide informed consent for study inclusion. Participants complete a 15-minute online core module. Eligible participants donate a saliva sample via a provided saliva collection kit and return in a pre-paid envelope. Participants can complete other short modules on other experiences, incl. mood, treatment and personality.
Visit Trial SiteSecretary to the Chairperson of the Ethics Committee
hrec.secretariat@qimrb.edu.au
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InsideOut acknowledges the tradition of custodianship and law of the Country on which the University of Sydney and Charles Perkins Centre campus stands. We pay our respects to those who have cared and continue to care for Country. We are committed to diversifying research and eliminating inequities and discrimination in healthcare. We welcome all people regardless of age, gender, race, size, sexuality, language, socioeconomic status, location or ability.