Aims
By listening to every voice, the LivED project hopes to fill gaps and silences in eating disorder awareness, understanding and engagement in health services. LivED is a digital platform co-designed with lived experience that collects stories, feedback, outcomes and treatment data from people with an eating disorder as well as their carers. It uses novel, creative ways to capture health experiences – including journal entries, voice recordings, images and standard outcome questionnaires. Users can also opt to link their accounts of treatment and system experience to their formal health records, building a more complete picture of their experience.

Background
Research into lived experiences of eating disorders can be limited to individual stories and situations where people have to fit into research rather than research being built around people. LivED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts to allow people to share their stories, their way. Its overall objective is to improve and diversify the understanding of eating disorders within the community and to inform health system approaches. LivED is a place where anyone who has ever experienced body image, eating or exercise concerns, anyone who has been diagnosed with an eating disorder, or anyone who has a lived experience but has never shared it, can contribute to research.

More here: https://lived.org.au/