Do you have a lived experience of an eating disorder and feel like you did / did not receive the care you needed? 

Are you passionate about changing the health system for people with eating disorders?  

Researchers at InsideOut Institute are hoping to fill the gaps and silences about eating disorders through ‘livED’.

If you are 16 years or above with a lived experience of an eating disorder, we invite you to share your story here.

Research into lived and living experiences of eating disorders can take a limited view of individual stories and situations where people have to fit into the research rather than the research being built around people. The livED project aims to change that.  

livED is a place where anyone who has ever experienced body image, eating or exercise concerns, anyone who has been diagnosed with an eating disorder or anyone who has a lived experience but has never shared it, can contribute to research. Contributions can be as individual as the person with the choice of journal entries, short responses, recordings, image uploads or health measures.

livED is the first of its kind in mental health research, co-designed by lived experience, clinical and digital experts uniquely developed to allow people to share their stories, their way, with the overall objective to improve and diversify the understanding of eating disorders within the community and to inform health system approaches.

We are seeking people who:

• Are 16 years or over
• Have a self-reported past or current lived experience of eating disorder symptoms, whether formally diagnosed or not
• Have access to a computer, mobile or tablet device via an internet connection
• Able to read and respond in the English language

To take part, please head to livED.

If at any time are feeling distressed, please call The Butterfly National Helpline 1800 ED HOPE (1800 33 4673).

This study has been approved by the University of Sydney Human Research Ethics Committee (reference number: 2023/895).